Association ou organisation à but non lucratif
Dernière mise à jour : 5 juin 2014 22:44:44
Global Hydranencephaly Foundation's Mission and Vision Statements serve as the foundational language for the organization. Together these statements work to establish organizational behavior plans, guide the decision-making process, and determine the standards for those who represent our name and work effortless to build our reputation.
MISSION: The Global Hydranencephaly Foundation is a family driven nonprofit organization dedicated to providing families faced with a diagnosis of hydranencephaly, the opportunity to help their child live the quality of life he or she deserves. The family-to-family resource network is the foundation of this mission; an ideally structured, multi-faceted community for the dissemination of invaluable information, sharing of effective care management strategies specific to the unique circumstances a family faced with diagnosis of this rare neurological condition may encounter, and individualized, life-long support. Emphasis is placed on the development of empowered parent advocates, strengthened by availability of comprehensive information, geographically tailored resources, and a confident awareness of the rights children have to quality, compassionate care without discrimination. We embrace the opportunity for continuous growth through the expansion of additional collaborative partnerships with like-minded organizations and reputable community businesses. Through community-based awareness campaigns and the planned infiltration of the medical community, we aim to conquer the misconceptions that exist surrounding this diagnosis and portray a clearer picture of the possibilities that exist for these children; giving multiple reasons to "Believe in the Impossible!"
In effort to carry out this mission, GHF will:
The business organizational plan displays the value GHF places on community-based awareness campaigns, proper representation, and immediate recognition of its logo and mission in order to strengthen and further develop in the direction of positive change. GHF embraces any opportunity for continuous growth thorough collaborative partnerships with like-minded organizations and reputable community businesses.
As GHF awaits receipt of their 501c3 tax exemption status, it is undetermined when contributions will be tax deductible. Donations to Global Hydranencephaly Foundation are appreciated and utilized as support for the individualized programs catering to those families faced with a diagnosis of hydranencephaly.
Contributions are utilized for:
In keeping with the mission of our foundation, we will expand upon our current level of awareness and gain greater strength through advocacy; giving individuals reason to "Believe in the Impossible!"
Disability , Community development , Research and science , neurology , Network of nonprofits , Awareness , neurological conditions , Human services , family support , hydranencephaly , Volunteering , Disabilities , Human rights and civil liberties , Child Development , Child & Family Advocate , rare disease , Family , Special Needs , Disease Prevention , child loss , advocacy , Health and medicine , Philanthropy , Education