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Dernière mise à jour: 18 févr. 2013 21:07:35
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.
We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
Volunteers are the key to our success, and we encourage you to get involved! Whether you join a committee and help get sponsors for an event, recruit companies to put together walk teams or volunteer time in our office, you help us achieve our mission—curing and controlling cystic fibrosis. Take a moment to see what a difference you can make by supporting events throughout the year. Together, we can continue adding tomorrows every day to the lives of people with CF
We are looking currently for volunteers to assist with our cycle event down in Long Branch on October 13, 2012, but we are always in need of volunteers in the office and at other events throughout the year. If you are interested in volunteering or would like more information please contact Sabina at the Cystic Fibrosis Foundation- Greater New Jersey Chapter.