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Huntington's Disease Society of America

Association ou organisation à but non lucratif

Dernière mise à jour : 13 févr. 2014 18:41:37

Description

The Huntington's Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington's disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. Notably, HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 45 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 160 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington's disease for medical professionals and the general public. To learn more about Huntington's disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.

Volet d'activités de HDSA

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Contacts de HDSA

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    Deborah Boyd image

    Deborah Boyd

    Zone géographique :
    Richland, MI, US
    Shawn Supers image

    Shawn Supers

    Zone géographique :
    Gore, VA, US
    Samantha Peters image

    Samantha Peters

    Zone géographique :
    New York, NY, US
    CJ Redfern image

    CJ Redfern

    Zone géographique :
    New York, NY, US
    Chana Pickett image

    Chana Pickett

    Zone géographique :
    Denton, TX, US
    Autres informations :
    Fan
    Sharese Ann Frederick image

    Sharese Ann Frederick

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan
    Sarah Pattison image

    Sarah Pattison

    Zone géographique :
    New York, NY, US
    Louise image

    Louise

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan
    debra image

    debra

    Zone géographique :
    new york , NY, US
    Autres informations :
    Fan
    Sean image

    Sean

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan

Coordonnées

Adresse e-mail :
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Site web :
http://www.hdsa.org
Adresse :
505 Eighth Avenue, Suite 902, New York, NY, 10018, US

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