Les messages du système

Ne manquez pas! S'identifier ou adhérer pour:

  • Ajouter à mes favoris des annonces pour reviser plus tard
  • Enregistrer vos recherches favorites
  • Recevoir quotidiennement des e-mails personnalisés qui correspondent à vos intérêts
  • Partager Les annonces de votre réseau
  • Se connecter avec vos organisations préférées
  • Publier Opportunités pour votre organisation
S'identifier Adhérer

Actions sur cette page

Logo de l'organisation

Huntington's Disease Society of America

Association ou organisation à but non lucratif

Dernière mise à jour: 19 mars 2012 15:32:40

Description

The Huntington's Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington's disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. Notably, HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 45 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 160 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington's disease for medical professionals and the general public. To learn more about Huntington's disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.

Volet d'activités de HDSA

Tout afficher (17)

Organisations de HDSA

Pas encore de contact. Cliquez ici pour connecter cette organisation avec la vôtre.

Contacts de HDSA

Tout afficher (9)
  • Chana Pickett image

    Chana Pickett

    Zone géographique :
    Denton, TX, US
    Autres informations :
    Fan
  • Sharese Ann Frederick image

    Sharese Ann Frederick

    Zone géographique :
    Bronx, NY, US
    Autres informations :
    Fan
  • Sarah Pattison image

    Sarah Pattison

    Zone géographique :
    New York, NY, US
  • debra image

    debra

    Zone géographique :
    new york , NY, US
    Autres informations :
    Fan
  • Sean image

    Sean

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan
  • Robert image

    Robert

    Zone géographique :
    New York, US
    Autres informations :
    Fan
  • Ashlee image

    Ashlee

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan
  • Louise image

    Louise

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan
  • Leah image

    Leah

    Zone géographique :
    New York, NY, US
    Autres informations :
    Fan

Coordonnées

Adresse e-mail :
Identifiez-vous pour voir ces adresses e-mail
Site web :
http://www.hdsa.org
Adresse :
505 Eighth Avenue, New York, New York, 10018, États-Unis

Mots-clés

Health and medicine, Research and science, Volunteering

Administrateurs/trices

Adhérer ou vous identifier pour administrer cette page.

Tout afficher (4)