Association ou organisation à but non lucratif
Dernière mise à jour : 16 août 2009 01:20:47
What is the Noonan Syndrome Support Group, Inc.?
The Group is intended for people whose lives are touched by Noonan Syndrome, and want to
exchange experiences and hopes regarding our children (or us). Associated professionals are also
We offer support, networking and information.
We aim to create greater awareness amongst professionals and the public at large.
We support research into the many aspects of this complex condition.