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The Life Raft Group

Association ou organisation à but non lucratif

Dernière mise à jour : 25 sept. 2013 14:52:09

Description

The mission of the Life Raft Group is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients' needs, the worldwide community of GIST advocates and the global health and research environment.

To do this, we focus on three key areas: research, patient support & education, and advocacy.

In the area of research, we fund and manage uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The Life Raft Group is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST. Our collaborative initiatives are constantly analyzed to ensure their focus remains on finding a cure for GIST.

The LRG also provides support & education to patients & caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting that gathers the patient, pharmaceutical & medical professional communities together in a supportive and educational setting. We also offer education to the GIST community at large through our videos & webinars, websites, worldwide GIST specialist database, a one-of-a-kind GIST-specific clinical trials database, newsletters & other materials.

In addition, The LRG is a very active presence in effecting change in the GIST community. Our advocacy role ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas in order to better inform & empower patients, championing patients' needs before government & policy makers and reporting on trends in dosage and survival to the world.

Annonces de The Life Raft Group

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  • OFFICE MANAGER - Permanent/Part-Time - Emploi

    Dernière mise à jour :
    9 avr. 2014
    Zone géographique :
    Wayne, NJ, US
    Description :
    We are a dynamic support organization that directs research to find a cure for a rare cancer and helps those affected through support and advocacy until we do. ...
  • Program/Marketing Associate - Emploi

    Dernière mise à jour :
    27 mars 2014
    Zone géographique :
    Wayne, NJ, US
    Description :
    We are a dynamic support organization that directs research to find a cure for a rare cancer and helps those affected through support and advocacy until we do. ...
  • GIST Ambassador - Mission bénévole

    Dernière mise à jour :
    28 févr. 2014
    Zone géographique :
    Wayne, NJ, US
    Description :
    Title: GIST Ambassador Worksite: Remotely Hours: 2 hours per week suggested Volunteers Needed: 10 Description: A GIST Ambassador is someone who helps to inf...

Volet d'activités de The Life Raft Group

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Organisations de The Life Raft Group

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Contacts de The Life Raft Group

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    Manya Gorman-Knutson image

    Manya Gorman-Knutson

    Zone géographique :
    Seattle, WA, US
    Autres informations :
    Fan
    Lynn B image

    Lynn B

    Zone géographique :
    West Caldwell, NJ, US
    Autres informations :
    Fan
    Diana Nieves image

    Diana Nieves

    Zone géographique :
    Wayne, NJ, US
    Tricia McAleer image

    Tricia McAleer

    Zone géographique :
    Montclair, NJ, US
    Autres informations :
    Fan
    Recruiter image

    Recruiter

    Zone géographique :
    Wayne, NJ, US
    Autres informations :
    Fan
    Sara Rothschild image

    Sara Rothschild

    Zone géographique :
    Wayne, NJ, US
    Autres informations :
    Fan
    Pam image

    Pam

    Zone géographique :
    Wayne, NJ, US
    Autres informations :
    Fan

Coordonnées

Adresse e-mail :
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Site web :
http://www.liferaftgroup.org
Numéro d'identification :
82-0547746
Numéro de téléphone :
973-837-9092
Adresse :
155 Rt 46 West (Wayne Plaza II) Suite 202, Wayne, NJ, 07470, US

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